Data Loading...
Leprosy Rehabilitation - Team work. Close to heart program of my humble self along with team for 10 years Flipbook PDF
Leprosy Rehabilitation - Team work. Close to heart program of my humble self along with team for 10 years
117 Views
64 Downloads
FLIP PDF 7.82MB
Committed in the support of Leprosy Afflicted Persons
Sri Ramakrishna Math, Chennai
Our Salutations to Light and Sound by The Founder of Nishabdha Seva
Blessed are we … I should see God in the poor, and it is for my salvation that I go and worship them. The poor and the miserable are for our salvation, so that we may serve the Lord, coming in the shape of the distressed, coming in the shape of lunatic, the leprosy afflicted person.
WHY DO WE SUPPORT LAPs? • Most diseases never physically deform the patient. Leprosy causes physical deformities due to
• The stigma associated with the disease, forces people to excommunicate LAPs from the society.
– Asymptomatic nature of the disease – Loss of sensation on extremities – Stigma of the disease, etc
• Due to the permanent nature of their physical deformities, society treats the diseased and the cured alike.
• With no jobs and other means to livelihood, LAPs are forced to live as beggars.
SUMMARY OF ACTIVITIES • • • • • • • • •
LAPs Identification Education Supporting LAPs Preventing de-habilitation Community life Achievements Through the Government Challenges Success Stories
LAPs IDENTIFICATION • Through Govt. hospitals • Through peer groups active in Chennai, Kanchipuram & Thiruvallur districts
Peer Group Formation
Peer Group Formation
Education • For LAPs: Guiding self care of their extremities to prevent further disability.
• For Family Members & Society: Instructing members on facts about leprosy.
Self Care – Ulcer Dressing
Propagating facts about Leprosy
SUPPORTING LAPS through Sankara Nethralaya.
Prevention of Disability To stop further disability To face life long problem Self care practices
Family Wellness Camp
Psychological Counseling
Yoga Therapy by Sanjeevani Ayurveda & Yoga Centre.
Preventing De-habilitation • Through Self – Help Groups on 2nd Saturday of every month. • Financial self sufficiency for LAPs. • Economic funding • Vocational Training • Provisions supplied for 13 LAPs every month through Udavum Ullangal.
Why Self Help Group (SHG)? Self confidence Individual Income Purchasing Power Money rotation To prevent loan with high rate of interest Peer group formation To share and care one’s problem Group conscious Self Help Group formation Internal Loan Self
1: 1
Bank Loan
Cluster formation
Self Help Group (SHGs)
Vocational Training - Candle Making
Vocational Training – Phenyl Making
Economic Funding
Distribution of Prosthetic Limb for LAP
Dr. P.Gunasekaran, Thiru. P.R.Sampath IAS, Swami Gautamananda
Visiting of Stalls by Shri.V.K.Subburaj, IAS, the then Principal Secretary, H&FW Dept, Govt. of Tamil Nadu
COMMUNITY LIFE
• Annual day celebrations for LAPs. • Sports events for LAPs. • Short tours to various
Annual Day Celebration
Annual Day Celebration
Annual Day Celebration
Sports Day Celebration
Sports Day Celebration
Achievements • Supporting 300 persons (and up to 1073 until now). • Successful reduction in the number of LAP beggars. • Provide technical and informational support for other aspiring service organizations. • Job opportunities for LAPs children through Chennai Social Service. • Coordination with other NGOs – Giants International, Vatsalyam, Udavum Ullangal, Sankara Nethralaya, Sarada Devi Seva Sangh, Nallore Vattam, Tulsi Rural Development Trust, Binergy Foundation – Covansys India
In Association With Government • 18 LAPs children were placed as Nursing Assistants in various Govt. hospitals.5 more students are under training. • Disability certificate provided by the Government for all LAPs. • Insurance coverage for 50 LAPs through TN Manual Welfare board.
• Pension Rs 1000/- from the Government for more than 150 LAPs. • 10 Houses arranged for LAPs through TN Slum Clearance Board.
CHALLENGES
Stigma Ignorance
False Beliefs
• Provide educational assistance for the children of LAPs • Provide job opportunities for the normal children of LAPs • Job opportunities for qualified LAPs • False propaganda by mass media
Even Indian Penal Code – discriminates a Leprosy Afflicted Person from others !!! 1. 2. 3. 4. 5. 6. 7.
Indian Divorce Act, 1869 Indian Christian Marriage Act, 1872 The Dissolution of Muslim Marriage Act, 1939 Industrial Disputes Act. 1947 Hindu Special Marriage Act, 1954 Sec. 27 (1) (g) Hindu Marriage Act, 1955 Sec. 13 (IV) Prevention of Begging Act, 1959 (Maharashtra, Gujarat & Karnataka) 8. Maharashtra State Road Transport Corporation Act, 1980
Even Indian Penal Code – discriminates a Leprosy Afflicted Person from others !!! 9. Indian Railways Act, 1985 Sec. 56 10. Life Insurance Corporation Act, Amendment in 1987 11. Motor Vehicle Act, 1988 12. Rehabilitation Council of India Act, 1992 13. The Persons with Disabilities Act, 1995 14.Hindu Adoption and Maintenance Act, Sec. 18 15. Bombay Municipal Corporation Act, clause 419 Juvenile Justice & Care and Protection Act, 2000 Sec. 48*
SUCCESS STORIES
Whatever you think that you will be. If you think yourself weak, weak you will be; if you think yourself strong, you will be. - Swami Vivekananda
Sri. Joseph Daniel Sri. Joseph Daniel & Smt. Arul Mary were one of the earliest to be rehabilitated by the Math. Today, they manage a successful textile business. Both their children are pursuing successful careers and one of them is married to the offspring of another LAP. Joseph and Mary were awarded the best achievers award by the Government of Tamilnadu in 2007.
Sri. Chandrasekhar Sri. Chandrasekhar has claw fingers and therefore could not use his fingers freely. He was a burden to his family.
We supported him with finance to setup a cloth business. Today, he is the bread winner for the family and has educated his 2 daughters up to college. He is well settled in life with his family.
Smt. Dhanam Smt. Dhanam used to make leaf plates and sell them to small hotels to earn her living.
We supported her with money to setup a cloth business. Today she is well off with her sister. She has been consistently repaying her SHG loans before time and thus has been an example for all the other LAPs.
Smt. Rajam Smt. Rajam had ulcers on her legs for the last 10 years. She was distanced by her husband and son in law. She then attempted suicide twice before coming to us. We have provided her with a tailoring machine which she uses to make her daily living. She also makes home made products to further enhance her income. We have arranged a house for her through the slum clearance board and also for her disability pension through the government.
Smt. Vasantha Smt. Vasantha owns and manages a pooja items selling shop near Tirthapaleeshwarar temple in Triplicane, Chennai. On an average she earns Rs.250/per day over and above her expenses. She has married off her three daughters. Today she mentors a group of 10 LAPs.
Sri. Ahmed Sri. Ahmed used to trade in mats with credit from usurial rates from small time money lenders. Today he manages a multiproduct business along with his daughter’s help.
He earns over Rs. 250/- per day and has got rid of his debts.
Sri. Ravi ‘Annai Sarada PCO’ owned and managed by Ravi was a standing inspiration for all those who visit the Leprosy sanitarium hospital at Tambaram. He had stayed away from home over 10 years and was under treatment. After much deliberation decided that he would provide a service that would benefit other LAPs. Though Ravi a successful business person, earning above Rs.10,000/per month, he is no more with us.
Sri. Victor Paul & Sri. Velayutham Sri. Victor Paul & Sri. Velayutham, both living in Balrampuram Leprosy Colony near Villivakkam, Chennai. Victor specializes in preparing greeting cards from processed leaves. Velayutham prepares artwork based greeting cards. Today both earn Rs. 5000/- per month through their skills. Paul’s works have been exported to Japan through the efforts of volunteers at the Ramakrishna Math.
Sri. Perumal Sri. Perumal was a painter. Due to his chronic ulcer with maggots, he took treatment in leprosy hospital for years. During his treatment we supported with a petty shop. Till his last breath he lead a peaceful life.
Sri.Balan Sri. Balan was a tyre-retreader. If he continued his profession it may lead to amputation of his leg. Hence we gave him training for preparation and marketing of Home made products such as phenyl, soap powder, etc. He is earning Rs. 200/- per day and has a house at Semmancherry.
About AMNION Therapy There is a large supply of chorio-amniotic tissues that can be retrieved & utilized as amniotic allograft. Amnion is an excellent biological dressing material. It reduces pain & enhances healing in treatment of ulcers, burns, wounds, indolent bedsores & abscesses. A potential alternative to imported collagen dressing materials that are expensive. Amnion grafts used in surgeries - vaginoplasty, gingival recession, vestibuloplasty, orbital & ocular surface reconstruction, etc…
Lack of tissue dressing increases mortality & morbidity in burns patients. There is strong demand for quality amnion dressing.
Properties of Amnion Membrane • Anti-inflammatory • Anti-fibrosis • Anti-scaring
• Anti-microbial • Low immunogenicity • Reasonable mechanical property • AM can act as a scaffold • Epithelial cells have similar features to stem cells
• Cells can be differentiated into all 3 germ layers
Why amnion therapy for LAPs? • Amnion recovered during delivery has pluripotent stem cells
• Stem cells have ability to grow and form functional tissue network in ulcers or burns of skin • Amnion dressing promotes healing by establishing tissue
rejuvenation and remodeling in skin • Amnion usually regarded as waste material and discarded after delivery
• Recovered amnion will be processed for their usability • Can be made useful for healing trophic ulcers of LAPs • Techno-economically viable therapeutic strategy
Amnion Separation
Amnion Processing Amnion Harvesting Storage & Distribution Sterilization
Packaging
Treatment by Dr. P. Gunasekaran, Director and Team, King Institute of Preventive Medicine & Research
Presentation of Amnion Therapy by Dr. Gunasekaran
Swamiji Gautamananda, Adyaksha, Shri.P.R.Sampath, IAS, State Commissioner for Differently Abled, Tamilnadu & Shri. Manishankar, Sevaraman Trust
Yohei-Sasakawa representative, WHO Goodwill Ambassador for Human Rights of LAPs with Math Swamijis at Review of Amnion Therapy
Healing efficiency – Observations • Amnion dressing materials processed sterile and used • Ulcer wounds debrided, cleaned and dressed with amnion
once in 7 days • 28 patients have undergone the treatment • Old amnion removed and replaced with new every week • The procedure is continued for 8 weeks to 6 months depending upon the severity of ulcers
Variables evaluated for the study a) Patient details: Patient age, sex & occupation b) Duration: Disease, ulcer, ulcer history & illness c) Ulcer details: Location, size, foot architecture, deformity details, ulcer condition, number of ulcers etc.
d) Previous treatment if any: e) Any other Complications:
f) Follow up details: a) Growth of granulation and healing b) Number of dressing needed for ulcer healing
c) Ulcer healing: Partial or complete d) Patient response & co-operation
e) Factors affecting contact establishment f) Performance scale with respect to treatment and duration
Review of Amnion Therapy • 28 patients admitted into study on 30/04/2011 • 24 patients continued amnion therapy • 16 patients recovered completely in 7 months • 6 patients will be released by mid of March 2012
• Therapy may be continued for 2 patients for 1 more month • Progress of healing is gradual and no infection is reported • The number of ulcer dressing varied approx. 4 to 32 weeks
• Secondary supportive therapy with Divine Noni, a wellness drink to improve immune and overall health status of patients • No other oral medicine / injectibles are given • No Antibiotics
Amnion Application
Efficiency of healing of trophic ulcers in LAPs before & after treatment Case Studies
Case 1
Before
After
Case 2 Before
After
Case 3 Before
After
Case 4 Right Leg
Left Leg
Case 5 Before
After
Case 6
Before
Healing in Progress
After Therapy
Case 7
Before
After
Case 8
Before
After
Case 9
Before
After
LAP sharing her happiness about rehabilitative activities of Mutt and healing of ulcers by amnion therapy
Swami Vivekananda Says… Bold are my words and let me repeat that it is the greatest privilege in our lives that we are allowed to serve the Lord in all these shapes.
THANK YOU